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26 Years In: Lessons and Resources I’ve Learned Along the Way: Part 2
Finding the right resources can be just as challenging as managing chronic illness itself. The tools, providers, organizations, and support shared here aren’t meant to be exhaustive or prescriptive. They reflect what I haev learned through my experiences, research, and advocacy. This is meant to be a starting point and adding additional resources is the…
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The Hard Truths: Hidden Realities of My Chronic Illness
So much of chronic illness happens behind the scenes and I have learned to carry it all very quietly. Sharing on this blog is one of the scariest things I have ever done, but it is also necessary. Opening the door, even a little, reminds me that honesty creates connection and maybe someone out there…
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My Gastroparesis + Motility Journey Part 2
After months of progress, my symptoms came back stronger than ever, and I’ve spent this year fighting weight loss, malnutrition, and a GI tract that has nearly shut down again. I’m trying to stay hopeful as I prepare for what’s next, while also navigating the sadness of more setbacks and a life constantly interrupted by…










