Tag: Chronic illness
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The Trifecta: What is it and why do I have it?
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Researchers are still trying to understand why POTS, EDS, and MCAS overlap so frequently, but many believe connective tissue dysfunction, nervous system dysregulation, and mast cell activity may all play a role. While the exact connection is still being studied, the overlap is becoming increasingly difficult for patients and researchers to ignore.
Researchers are still trying to understand why POTS, EDS, and MCAS overlap so frequently, but many believe connective tissue dysfunction, nervous system dysregulation, and mast cell activity may all play a role. While the exact connection is still being studied, the overlap is becoming increasingly difficult for patients and researchers to ignore.
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Mast Cell Activation Syndrome: An Unpredictable Storm
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My body could be react to things it shouldn’t, at times that don’t make sense, in ways that are weird. Some days it’s mild, other days it feels like everything is flaring at once, my skin, my stomach, my heart, my head, all at the same time or rotating without warning. There’s no clear pattern,…
My body could be react to things it shouldn’t, at times that don’t make sense, in ways that are weird. Some days it’s mild, other days it feels like everything is flaring at once, my skin, my stomach, my heart, my head, all at the same time or rotating without warning. There’s no clear pattern,…
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CRPS Isn’t Black and White. Stop Pretending It Is.
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Living with CRPS means learning that medicine rarely offers simple answers. As social media debates treatments like spinal cord stimulators, it’s important to remember that real patients live in the gray areas where one person’s failure can be another person’s relief.
Living with CRPS means learning that medicine rarely offers simple answers. As social media debates treatments like spinal cord stimulators, it’s important to remember that real patients live in the gray areas where one person’s failure can be another person’s relief.
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My hEDS Diagnosis
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It wasn’t quick. It wasn’t straightforward. It wasn’t easy. BUT… it’s real and it finally has a name!
It wasn’t quick. It wasn’t straightforward. It wasn’t easy. BUT… it’s real and it finally has a name!
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Identity in Illness
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You know that question everyone is eventually asked? Can people change? I used to think change was bold and chosen. Now I know it can happen under pressure until you become someone new just to keep breathing. Identity changes many times when you’re ill.
You know that question everyone is eventually asked? Can people change? I used to think change was bold and chosen. Now I know it can happen under pressure until you become someone new just to keep breathing. Identity changes many times when you’re ill.
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26 Years In: Lessons and Resources I’ve Learned Along the Way: Part 2
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Finding the right resources can be just as challenging as managing chronic illness itself. The tools, providers, organizations, and support shared here aren’t meant to be exhaustive or prescriptive. They reflect what I haev learned through my experiences, research, and advocacy. This is meant to be a starting point and adding additional resources is the…
Finding the right resources can be just as challenging as managing chronic illness itself. The tools, providers, organizations, and support shared here aren’t meant to be exhaustive or prescriptive. They reflect what I haev learned through my experiences, research, and advocacy. This is meant to be a starting point and adding additional resources is the…
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Paying the Price: Chronic Illness in America
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What follows is shaped by my experience navigating chronic illness in a system that demands constant negotiation to access care.
What follows is shaped by my experience navigating chronic illness in a system that demands constant negotiation to access care.
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Why I Started The Chronic Diaries.
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After 26+ years of living with chronic illness, I’ve struggled with identity, isolation, and resilience. This blog is where I sharemy story to connect with others who may feel the same.
After 26+ years of living with chronic illness, I’ve struggled with identity, isolation, and resilience. This blog is where I sharemy story to connect with others who may feel the same.