Tag: chronic care
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How to Become Really Good at Being Sick: Part 2
Part 2 of How to Become Really Good at Being Sick picks up where we left off: with a few more lessons from the unofficial chronic illness curriculum, including becoming the CEO of your health, advocating for yourself, and learning to spot the patterns.
Part 2 of How to Become Really Good at Being Sick picks up where we left off: with a few more lessons from the unofficial chronic illness curriculum, including becoming the CEO of your health, advocating for yourself, and learning to spot the patterns.
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How to Become Really Good at Being Sick: Part 1
Spoiler: You don’t choose this. You just wake up one day and realize you’re really, really good at it.
Spoiler: You don’t choose this. You just wake up one day and realize you’re really, really good at it.
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The Trifecta: What is it and why do I have it?
Researchers are still trying to understand why POTS, EDS, and MCAS overlap so frequently, but many believe connective tissue dysfunction, nervous system dysregulation, and mast cell activity may all play a role. While the exact connection is still being studied, the overlap is becoming increasingly difficult for patients and researchers to ignore.
Researchers are still trying to understand why POTS, EDS, and MCAS overlap so frequently, but many believe connective tissue dysfunction, nervous system dysregulation, and mast cell activity may all play a role. While the exact connection is still being studied, the overlap is becoming increasingly difficult for patients and researchers to ignore.
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Mast Cell Activation Syndrome: An Unpredictable Storm
My body could be react to things it shouldn’t, at times that don’t make sense, in ways that are weird. Some days it’s mild, other days it feels like everything is flaring at once, my skin, my stomach, my heart, my head, all at the same time or rotating without warning. There’s no clear pattern,…
My body could be react to things it shouldn’t, at times that don’t make sense, in ways that are weird. Some days it’s mild, other days it feels like everything is flaring at once, my skin, my stomach, my heart, my head, all at the same time or rotating without warning. There’s no clear pattern,…
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CRPS Isn’t Black and White. Stop Pretending It Is.
Living with CRPS means learning that medicine rarely offers simple answers. As social media debates treatments like spinal cord stimulators, it’s important to remember that real patients live in the gray areas where one person’s failure can be another person’s relief.
Living with CRPS means learning that medicine rarely offers simple answers. As social media debates treatments like spinal cord stimulators, it’s important to remember that real patients live in the gray areas where one person’s failure can be another person’s relief.
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Paying the Price: Chronic Illness in America
What follows is shaped by my experience navigating chronic illness in a system that demands constant negotiation to access care.
What follows is shaped by my experience navigating chronic illness in a system that demands constant negotiation to access care.