Tag: systemic barriers

  • CRPS Isn’t Black and White. Stop Pretending It Is.

    CRPS Isn’t Black and White. Stop Pretending It Is.

    Living with CRPS means learning that medicine rarely offers simple answers. As social media debates treatments like spinal cord stimulators, it’s important to remember that real patients live in the gray areas where one person’s failure can be another person’s relief.

    Living with CRPS means learning that medicine rarely offers simple answers. As social media debates treatments like spinal cord stimulators, it’s important to remember that real patients live in the gray areas where one person’s failure can be another person’s relief.

  • My hEDS Diagnosis

    My hEDS Diagnosis

    It wasn’t quick. It wasn’t straightforward. It wasn’t easy. BUT… it’s real and it finally has a name!

    It wasn’t quick. It wasn’t straightforward. It wasn’t easy. BUT… it’s real and it finally has a name!

  • Paying the Price: Chronic Illness in America

    Paying the Price: Chronic Illness in America

    What follows is shaped by my experience navigating chronic illness in a system that demands constant negotiation to access care.

    What follows is shaped by my experience navigating chronic illness in a system that demands constant negotiation to access care.