Tag: healthcare struggles
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The Trifecta: What is it and why do I have it?
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Researchers are still trying to understand why POTS, EDS, and MCAS overlap so frequently, but many believe connective tissue dysfunction, nervous system dysregulation, and mast cell activity may all play a role. While the exact connection is still being studied, the overlap is becoming increasingly difficult for patients and researchers to ignore.
Researchers are still trying to understand why POTS, EDS, and MCAS overlap so frequently, but many believe connective tissue dysfunction, nervous system dysregulation, and mast cell activity may all play a role. While the exact connection is still being studied, the overlap is becoming increasingly difficult for patients and researchers to ignore.
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Mast Cell Activation Syndrome: An Unpredictable Storm
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My body could be react to things it shouldn’t, at times that don’t make sense, in ways that are weird. Some days it’s mild, other days it feels like everything is flaring at once, my skin, my stomach, my heart, my head, all at the same time or rotating without warning. There’s no clear pattern,…
My body could be react to things it shouldn’t, at times that don’t make sense, in ways that are weird. Some days it’s mild, other days it feels like everything is flaring at once, my skin, my stomach, my heart, my head, all at the same time or rotating without warning. There’s no clear pattern,…
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CRPS Isn’t Black and White. Stop Pretending It Is.
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Living with CRPS means learning that medicine rarely offers simple answers. As social media debates treatments like spinal cord stimulators, it’s important to remember that real patients live in the gray areas where one person’s failure can be another person’s relief.
Living with CRPS means learning that medicine rarely offers simple answers. As social media debates treatments like spinal cord stimulators, it’s important to remember that real patients live in the gray areas where one person’s failure can be another person’s relief.
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My hEDS Diagnosis
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It wasn’t quick. It wasn’t straightforward. It wasn’t easy. BUT… it’s real and it finally has a name!
It wasn’t quick. It wasn’t straightforward. It wasn’t easy. BUT… it’s real and it finally has a name!
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Paying the Price: Chronic Illness in America
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What follows is shaped by my experience navigating chronic illness in a system that demands constant negotiation to access care.
What follows is shaped by my experience navigating chronic illness in a system that demands constant negotiation to access care.