Tag: Chronic Illness Resources
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How to Become Really Good at Being Sick: Part 2
Part 2 of How to Become Really Good at Being Sick picks up where we left off: with a few more lessons from the unofficial chronic illness curriculum, including becoming the CEO of your health, advocating for yourself, and learning to spot the patterns.
Part 2 of How to Become Really Good at Being Sick picks up where we left off: with a few more lessons from the unofficial chronic illness curriculum, including becoming the CEO of your health, advocating for yourself, and learning to spot the patterns.
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How to Become Really Good at Being Sick: Part 1
Spoiler: You don’t choose this. You just wake up one day and realize you’re really, really good at it.
Spoiler: You don’t choose this. You just wake up one day and realize you’re really, really good at it.
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The Trifecta: What is it and why do I have it?
Researchers are still trying to understand why POTS, EDS, and MCAS overlap so frequently, but many believe connective tissue dysfunction, nervous system dysregulation, and mast cell activity may all play a role. While the exact connection is still being studied, the overlap is becoming increasingly difficult for patients and researchers to ignore.
Researchers are still trying to understand why POTS, EDS, and MCAS overlap so frequently, but many believe connective tissue dysfunction, nervous system dysregulation, and mast cell activity may all play a role. While the exact connection is still being studied, the overlap is becoming increasingly difficult for patients and researchers to ignore.
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26 Years In: Lessons and Resources I’ve Learned Along the Way: Part 2
Finding the right resources can be just as challenging as managing chronic illness itself. The tools, providers, organizations, and support shared here aren’t meant to be exhaustive or prescriptive. They reflect what I haev learned through my experiences, research, and advocacy. This is meant to be a starting point and adding additional resources is the…
Finding the right resources can be just as challenging as managing chronic illness itself. The tools, providers, organizations, and support shared here aren’t meant to be exhaustive or prescriptive. They reflect what I haev learned through my experiences, research, and advocacy. This is meant to be a starting point and adding additional resources is the…